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DiscussionWhat did you find most surprising once you were out of the ICU?
Intensive Care (ICU) | Last Active: Dec 16, 2021 | Replies (107)Comment receiving replies
Replies to "Dear Cindy, I feel for you having to go back to work so soon. Being hospitalized..."
I had never heard of PICS before reading about it in this group. I now realize what I experienced was PICS. Since December of 2018, I was in the ICU 3 times. The first 2 times were due to kidney failure and afterwards did not have any problems. In February of 2019 I received my liver transplant with a MELD score above 40. I had 2 cardiac arrest episodes during the surgery because a blood clot hit my heart. I was not conscious for several days after surgery. Once I woke I could not speak (tracheostomy without the plug in), lift my hands, couldn’t stand without 3 people holding me up, on a feeding tube and oxygen. I had double vision off and on and my hearing was not very good (fluid in my ear). I also had vivid dreams. My ICU stay was 12 days before being moved to the liver floor. I had many complications after the move and spent a total of 6 weeks in the hospital and another 3 weeks in a rehabilitation hospital. I experienced many of the issues noted by others in the group. The dreams mixed with reality, most all of my muscles had atrophied and were extremely slow to recover especially in my legs. I still could not stand up when discharged. The best thing was going to the rehabilitation hospital and slowly being able to stand and eventually walk. They taught me how to use a walker, roll-a-tor and learn basic skills to take care of myself such as stepping down steps or getting into a vehicle. I continued to go to outpatient PT for 3 months. I know I the complications increased my stay, which were unexpected. Knowing details ahead of time may have helped me realize what was happening after surgery and release from the ICU. It was scary not knowing why my body and mind were not working properly. I am doing well now, just had my 4 months checkup.