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@alex12119

Thank you for your response and for sharing parts of your story and how you have worked towards healing. The narrative of what I remember (which is quite a bit, as the use of sedation was limited, although my mental status was definitely altered at times) is my starting point. When I feel ready, I think my medical records will be helpful in further understanding what I endured and clarifying the discrepancies that have come up in what I've been told and what I remember. While I asked a few questions along the way (such as what medications I was being given and where my central venous catheter for dialysis went within my body), I also was afraid to ask many things because I was afraid of the reality that I was almost certainly going to lose my life. Between how ill I was and my sheer terror, I wasn't very talkative. A lot of things weren't explained to me. For example, the process of dialysis was explained as it happened, but the fact that I was in acute renal failure was never actually stated until I saw my discharge papers. Somehow I never put two and two together! I have a very limited understanding of things like why I experienced paralysis or why they expected my respiratory collapse and obtained consent to intubate me. I remember two of the nurses from the ICU by name, one of whom held my hand while I finally broke down and cried after it was clear that I would survive the ordeal. That gesture meant so much to me. I'd love to talk to them. Perhaps I will look into that. I definitely plan to talk to my friend who visited as well. I took some photos myself as I recovered to try and document the experience for myself, the earliest of which have come to be significant to me. They are concrete proof in a sea of hazy memories and unanswered questions. Thank you again for sharing your experience and your advice - your suggestions are helpful things to think about in my own process of healing.

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Replies to "Thank you for your response and for sharing parts of your story and how you have..."

Alex, I hope that you've continued to heal since you wrote this post nearly 18 months ago! I laughed when I read that you didn't know you were in kidney failure. I had a similar moment, as I sat on my couch with my long oxygen "leash" that tethered me to 24/7 oxygen and read that I had Respiratory Failure! "Holy crap---I didn't know I had respiratory failure!" I said to my husband. He chuckled and picked up my oxygen hose and said, "No? What was your first clue?" (He'd had months to process that information, but I'd only been aware for a couple of weeks!)

I'm glad that you're taking pictures. I am doing the same; I even saved a "spare" tracheotomy set that I found in my bags of supplies from the hospital; it's a concrete example of what my body went through, even though my mind was often far away.