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DiscussionWhat did you find most surprising once you were out of the ICU?
Intensive Care (ICU) | Last Active: Dec 16, 2021 | Replies (107)Comment receiving replies
Replies to "Hi Alex -- Yes, it's helpful to create your own chronology, and getting your medical records..."
It sounds like we had similar experiences - I am a severe sepsis/septic shock survivor. I’m glad I’m not the only one that tries putting pieces together by looking at records. I’ve seen several lab reports, my admitting ICU doctor’s report from the night I was admitted (to that hospital) and the reports from when I coded post ICU. I would love to get the reports from the first hospital. My husband also took notes and journaled.
Thank you for sharing - it truly helps to know there are others like me.
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Thank you for your response and for sharing parts of your story and how you have worked towards healing. The narrative of what I remember (which is quite a bit, as the use of sedation was limited, although my mental status was definitely altered at times) is my starting point. When I feel ready, I think my medical records will be helpful in further understanding what I endured and clarifying the discrepancies that have come up in what I've been told and what I remember. While I asked a few questions along the way (such as what medications I was being given and where my central venous catheter for dialysis went within my body), I also was afraid to ask many things because I was afraid of the reality that I was almost certainly going to lose my life. Between how ill I was and my sheer terror, I wasn't very talkative. A lot of things weren't explained to me. For example, the process of dialysis was explained as it happened, but the fact that I was in acute renal failure was never actually stated until I saw my discharge papers. Somehow I never put two and two together! I have a very limited understanding of things like why I experienced paralysis or why they expected my respiratory collapse and obtained consent to intubate me. I remember two of the nurses from the ICU by name, one of whom held my hand while I finally broke down and cried after it was clear that I would survive the ordeal. That gesture meant so much to me. I'd love to talk to them. Perhaps I will look into that. I definitely plan to talk to my friend who visited as well. I took some photos myself as I recovered to try and document the experience for myself, the earliest of which have come to be significant to me. They are concrete proof in a sea of hazy memories and unanswered questions. Thank you again for sharing your experience and your advice - your suggestions are helpful things to think about in my own process of healing.
Wow sounds like you went through alot. I hope you are much better now and may i ask how long after ICU did you begin getting stronger and back to normal? My mom said she kept a day to day diary for me but i am not ready to see it as its still very fresh for me and i want to heal fully before i see that