I know what you mean. Low FODMAP should not be last resort but part of a healing regimen that includes medication, nutrition and medical guidance. I started with Low FODMAP and have now moved to the Specific Carbohydrate Diet. I had been doing pretty well for two weeks (minus a setback caused by eating raisins), but today I introduced homemade yogurt which was probably a mistake because I have been bloated all afternoon. So I am sort of depressed again, thinking I am back to square one. It shall pass.
For a simple case of diarrhea no special diet is needed usually, for the rest of us with chronic diarrhea following a diet that avoids irritation to the gut is a must. I don’t have a specific diagnosis. We started out with CDiff (two different tests were negative), then we moved to SIBO, but that is not clear. GI doc does not think I have Chrons or UC because he thinks I am too old to develop those and a CT scan of my digestive track looked totally normal, but I may have something called microscopic colitis, which is more typical to develop for someone in their sixties like me. Had a normal colonoscopy last year but will likely have another before end of year if I don’t improve on diet. This is all crazy making because we hear such disparate advice and it takes a long time to arrive at anything definitive. Very frustrating and lonely process. This is why I post. You feel like the only person with these problems who can’t eat anything and is always worrying about having a bad reaction to food and running to bathroom. Thank you to everyone who reads and responds to these posts.
Hi there, were you ever able to find out what was causing your symptoms? I am in similar boat and have my first visit with Mayo on 3/29 in Rochester.