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Does Small Fiber Neuropathy also cause muscle spasms?

Neuropathy | Last Active: Jan 31 10:26am | Replies (61)
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@richj8

Hi everyone. I just joined and was recently diagnosed with SFN earlier this week, after struggling with many difficult symptoms for over 18 months. The main question two questions I have are 1) does anyone suffer from SFN affecting their cranial nerves? I’ve had burning in my right ear, right side of my tongue and throat since this all started fall of 2017. 2) does SFN cause muscle twitching for anyone?

I have follow up tests next week as my neurologist continue to try to pinpoint the cause of the SFN. They have been skeptical of my symptoms up to now, since they couldn’t find a cause until the recent punch biopsy. I’m on lyrica but it doesn’t offer enough help, especially for the burning pain in my face and mouth. Any treatment suggestions would be incredible. Thank for your time!

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Replies to "Hi everyone. I just joined and was recently diagnosed with SFN earlier this week, after struggling..."
John, Volunteer Mentor | @johnbishop | May 25, 2019

Hello @richj8, welcome to Connect. It's good that you are asking questions and learning as much as you can about your health conditions. I have small fiber peripheral neuropathy but only have numbness and no pain. I have no medical training or background but have found a little information that may be helpful. I'm hoping other members with experience to share will be able to respond to your questions.

Multiple Cranial Neuropathies
-- https://www.hopkinsmedicine.org/health/conditions-and-diseases/multiple-cranial-neuropathies

There are other discussions you may be interested in that discuss your questions

> Groups > Neuropathy > Does Small Fiber Neuropathy also cause muscle spasms?
-- https://connect.mayoclinic.org/discussion/does-small-fiber-neuropathy-also-cause-muscle-spasms/

This discussion includes burning pain in face and mouth symptoms as described on the Mayo Clinic website here:

Trigeminal neuralgia
-- https://www.mayoclinic.org/diseases-conditions/trigeminal-neuralgia/symptoms-causes/syc-20353344

> Groups > Brain & Nervous System > Trigeminal Neuralgia*
-- https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/

@richj8 can you update us after you receive your test results and meet with your neurologist?

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rita8898 | @rita8898 | May 25, 2019

Hi Rich. My husband also shares your symptoms with burning in his mouth , ear and sometimes his eyes. He was wondering if all this was caused by his shingles shot he had gotten recently? Did you get this shot leading up to your burning sensations. R.R

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