Hi pfbacon,

Have you tried extra potassium tablets and magnesium capsules, taken at night? Long ago (it seems) when I was in the early stages of what became profound PN (Axonal and Peroneal and Tibial nerves are all unresponsive on EMG - ie 'dead'), I had horrible muscle cramps in my calves.

I was doing that awful 'dance' at night...jumping out of bed and stretching my calves to stop the cramp. Sometimes many times a night.

That's when I started taking potassium and magnesium at night. I thought they helped. How much, I'm not sure.

I know it won't be any comfort, but once my PN was profound, the cramps stopped. Of course by then I was completely disabled, and now I wear braces and walk with a walker.

For me, my PN is continuing to affect more and more organ/systems of my body. This is because my PN is caused by my Immune System, which attacks my own body's nervous system. So it is busily at work. The latest system under attack is my gastrointestinal system.

I think I am in the beginning stage of ocular neuropathy. This is from an article, Ocular neuropathy in peripheral neuropathies.

I can't include the link because I'm still new to this forum.

Ocular movements and coordination require complex and integrated functions of somatic and autonomic nervous systems. Neurological disorders affecting these nervous systems may cause ocular dysfunction involving extraocular muscles and pupils. In this article, the prevalence, clinical presentations, and management of ocular neuropathy related to certain peripheral neuropathies...

Regards, ElaineD

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