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Does Small Fiber Neuropathy also cause muscle spasms?

Neuropathy | Last Active: Jan 31 10:26am | Replies (61)

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@joey6

Hi Carlos, @carlitto
I share many of your symptoms and have spent years searching for an accurate diagnosis that would lead me to treatment. My best response to you or anyone for that matter who has been diagnosed with SFPN (small fiber poly neuropathy) is to read the research and presentations of Dr. Anne Oaklander (Mass, General Hospital, Nerve Unit). She has discovered a potential treatment for people with “apparently autoimmune” SFPN. This may be what you have, considering your response to prednisone (which may have decreased the inflammation related to an autoimmune condition that could be causing/related to your SFPN). In addition, I suggest that you research and perhaps contact Dr. David Systrom (Brigham and Women’s Hospital, Boston). He has worked with Dr. Oaklander and approaches SFPN from the pulmonary/cardiac angle. He has also had patients respond well to his spefic rx protocols. Best wishes to you for finding answers and relief. 💫

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Replies to "Hi Carlos, @carlitto I share many of your symptoms and have spent years searching for an..."

Wonderful information! Thanks!
Rose

Hi Carlos ,
You have really been put through the ringer !! Like you and so many we are navigating what is happening to us . Yes it can be frustrating as I have seen many doctors and still I do not have any answers. I don’t believe anyone should be telling you which job you should take. I can only say for me and my older brother were lucky to find something we had a passion for and for that I am very grateful. My other two brothers hated what they did their whole life and I saw what that did to them to be so unhappy till the day they retired . You can learn coping skills to deal with stress as I am doing to. If your lucky enough to make money doing something you love well it’s not really work . Good luck to you in your decisions and your journey to happiness and peace