Welcome to Mayo Connect. I appreciate your post regarding a GIST Tumor. I was not familiar with this type of tumor and I found some information on Mayo's website. Here is the link to that information: https://www.mayoclinic.org/diseases-conditions/gastrointestinal-stromal-tumors/cdc-20387715
In searching Mayo Connect, I only found one person who had posted about this, her username is @mariafeeney. If you click on her username you can view her post from 2012. Perhaps she, or someone else, will respond to your post.
In the meantime, as you are comfortable doing so, can you give me some background on this diagnosis?
For example, what type of symptoms led your doctor to discover this tumor?
How long ago were you diagnosed?
What type of test or scan was used to diagnose it (from the Mayo article it appears that a CT scan or endoscopy is most often used to diagnosis this)?
What type of treatment has been suggested for you, i.e. surgery or medication?