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@jolinda. Oh my, is this childish behavior still going on? Learning to be your own advocate, and giving up on the medical "Gods" is where we need to be. I am very interested in your back end Mayo experience. I remember that we were given a special # to call 7/24. They told us that no matter when, we would always speak with a member of the "team". And that is what happened.....on Sunday evening at about 9 pm with some edema showing up, we called and spoke to a physician who we had met previously. He was confident and we felt comfortable with his suggestions.

And then came the diagnosis of recurring cancer in a couple of years. So...off we went for 7 weeks of treatment in Rochester. That team was just amazing. We loved the Nurse Practitioners, the actual treatment team and our oncologist. My feeling was that during a team meeting at the beginning of the week, everyone was updated on their scheduled patient's journeys. We surmised this by the questions they asked us. We always saw a team member and it seemed to me that there was transparency and knowledgeable effort to give the best patient care. So, while there may still be work to do...Mayo has the right patient care map. My partner actually learned everyone's name and when he left he had cards of gratitude for everyone.

Six months later when we went back again, they greeted us by name. We also tried to figure out how many patients they must see in a day. It is mind-boggling. And how are they so cheery at 7:30 in the morning? My very best for a beautiful day. Chris

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Replies to "@jolinda. Oh my, is this childish behavior still going on? Learning to be your own advocate,..."

I am also having trouble.
I am very troubled by what has happened to me. I was HUGE supporter and lately they just don’t care. You would think I would be a person of study given my unique situation. Oh well. I will continue to see my regular cardiologist and do my best to fight every day. Sorry you are experiencing hardship as well. We are patients..not numbers