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@artscaping

@anuntieoakley, This is very thoughtful. I was especially shocked by the fact that there are doctors who are unwilling to coordinate with others. My first experience with that kind of behavior was when the local surgeon said, if you choose Mayo, don't come to me for aftercare, I don't want to have to clean up someone else's mess. Hmmmmmmm...............

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Replies to "@anuntieoakley, This is very thoughtful. I was especially shocked by the fact that there are doctors..."

@artscaping Obviously a very insecure doctor. Glad you got rid of him.
JK

@artscaping Oooooh, that was an unprofessional thing for the local surgeon to say! I was very lucky when living in Los Angeles County, that my two specialists often conferred with each other, although they were not in the same medical group. Between them, they have guided me along my current path. Thanks to a member here reaching out when asked, I was able to connect before my move to a well-respected, Mayo Clinic trained specialist a couple of hours away, whom I will see for the first time tomorrow. He has agreed to take my case and has communicated with my former hematologist-oncologist.
Ginger

@artscaping
I had a nearly identical conversation with a Dr. on my local team while pursuing an experimental combined surgery/kidney transplant at Mayo. He was absolutely convinced I would come back as a cobbled together mess. Fortunately my instincts were right and my Mayo surgery was such a success that my cautious local doc is now referring other patients for the same surgery combo. I think he had seen a few bad cases come back to him and didn't want the same thing for me.
On the flip side I have struggled with my Mayo experience on the "back end" of transplant. The "team" approach lacks the ability for any one person to know you and your journey. I tried to get around the system and scheduled my visits with the same Dr. after transplant but succeeded for only a short while, now I get who ever has an opening on their schedule. The post transplant teams and nurses especially are overwhelmed with hundreds of patients cases and it's almost impossible for them to know you as a person.