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@ees1

I know I’ve seen lists before but, of course, I can’t find them now. It’s me, not you!! I’m traveling to Mayo in Rochester next month via Amtrak, have reservations at the Kahler across from Mayo, and am getting organized for my appointments. I have a meningioma, a cavernoma, Leukocytoclastic Vasculitis, and other nice stuff. Want to be as efficient as possible to get the most from the appointments. I’m going to ask about how one might relate to the other, course of action, drugs? Diet? Genetics involved? I’d appreciate your help with my list of questions. Anything at all to learn from them as much as possible. Thanks, all!!

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Replies to "I know I’ve seen lists before but, of course, I can’t find them now. It’s me,..."

Thanks for the tag, Ethan McConkey. I would write down any and all questions I think of regarding all of these issues and how they relate to each other. Many of these may be answered before you ask, but those that aren’t, your doctor will take the time you need to ask. Be prepared to have whatever tests you need while you are there, they will give you an itinerary when you check in. I don’t know the particulars of your health, but in a complex medical issue there is always plenty of questions. You may ask any one at any of your appointments questions regarding that test or scan etc. Finally, when the recommendations are made, you get to help make decisions for your care. I also asked for any possible recommendations for doctors in area, and sure enough there was a great doctor a couple hours away who worked with Mayo coordinating care. I would never accept a doctor who was unwilling to coordinate with others again, after witnessing it first hand. This is where patients become more important than medical politics. I wish you the best, and please keep us posted during or after your visit. If you have any more questions please feel free to ask me, I will answer if I am able.