@retiredteacher Carol, I have been thinking about you a lot and planned to PM you but by the time I get through the messages, I have been on for quite a while. It's terrible that you are going through this after you worked so hard and got a group going, walking daily. I really know nothing about neuropathy. Is there anything they can do to help alleviate the pain? It seems to have come on quite suddenly. Did the walking bring it on?
I hope that somehow you will be able to resume your walking, it's so good for you. If you can't walk I presume you can at least use an exercise bike, or perhaps even an elliptical. I know you will try to find something to replace walking if the neuropathy continues.
@marvinjsturing Congratulations on continuing your walking. That really is great. For me, getting in the habit of exercising, if I don't do it I feel guilty! I will never enjoy it but I feel good after I have gone to the gym and gone through my routine -- elliptical, six different machines, and a couple of other things, ending with some 12 pound weights. I spend about an hour there. My son is an exercise fanatic. I texted him today and told him I don't like sweating. He tells me that it's necessary.
Looking forward to hearing how things go after your June appointment. That's wonderful that your sister wants to be your donor. If she is not a good match, will she do a paired donation? Are you on dialysis? I don't know a lot about kidney transplants, do you have to be to the point of being on dialysis before you can get high enough to be a candidate? My niece's husband has been on dialysis for about 4 or 5 years now, waiting for a transplant. I hope he gets it soon, I pray for him nightly.
JK
@contentandwell I usually have to talk myself into walking, but I always feel better after I exercise. My sister is willing to do a paired donation. I am not on dialysis yet. Four years ago my nephrologist told me I would be on dialysis in a year maybe two. So far, I have been able to get by. I have read that people who get transplants before they need dialysis do better with a transplant. You do not need to be on dialysis to qualify. You just need to have CKD stage 4 or 5. I've been there for 4 years. But when you have pancreatic cancer, you have to be cancer free for 5 years before they will let you have a transplant.