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carolel (@carolel)

Epigastric/ abdominal pain

Chronic Pain | Last Active: Jan 21, 2019 | Replies (14)

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@roarimazebra

@carolel I was recently diagnosed with something called (ACNES) Abdominal cutaneous nerve entrapment syndrome it is a condition that causes chronic pain of the abdominal wall. It occurs when terminal branches of the lower thoracic intercostal nerves (7-12) are ‘entrapped’ in abdominal muscles, causing a severe localized neuropathic pain that is usually experienced at ventral portions of the abdomen.
I tend to guillotine stomach ache of Domino pain to the point that I would have pain when food would be processing through my intestines and stuff. It actually kept me from wanting to eat.

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Replies to "@carolel I was recently diagnosed with something called (ACNES) Abdominal cutaneous nerve entrapment syndrome it is..."

Hello @roarimazebra and welcome to Connect

I so appreciate your post regarding abdominal pain and ACNES. I had never heard of that before, but I am glad that you posted about your diagnosis. It sounds like you dealt with some very difficult symptoms before diagnosis. From your description it sounds like you must have lost weight from the pain and not wanting to eat. Was that the case?

If you care to share more, could you tell us how this was diagnosed? Was it through an MRI of the thoracic part of the spine? Is there any treatment for the pain? Is there any way the nerves can be released from the entrapment?

I look forward to hearing from you again.

@roarimazebra, like Teresa, I had not heard of this diagnosis before. if you don't mind me asking, how did you or are you managing this diagnosis?