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How did you manage the pain side effects of Prolia?
Osteoporosis & Bone Health | Last Active: Feb 18, 2023 | Replies (259)Comment receiving replies
JK, yes, the thought of fracturing always weighs heavily. My numbers were bad. Like many seniors, I fear losing my independence, being confined to a wheelchair, needing caregivers, etc, etc.
However, some of the shorter term side effects experienced after my third injection (went away after five to six weeks) were scary for me and I dont think I"m willing to deal with that one more time. And then there are the persistent g.i. issues which always ease up in the last month of the six month period. Which brings me back to a Reclast infusion, a drug that stays in your system for over a year with the potential for adverse events or risk getting fractures.
In a perfect world, there would be a better osteoporosis medication combined with an effective vaccine for Covid-19.
Replies to "JK, yes, the thought of fracturing always weighs heavily. My numbers were bad. Like many seniors,..."
Sue - those side effects are exactly why I won't take Reclast or any other bone-building drug. Even my own doctor admitted those drugs don't work. They make your bones look bigger because they make the dead bone stick around - usually you would pee it out. It stays around making your bones look more fortified - and yet, they are the same puny bones ready to break in an instant - and you've done nothing to make them better. The moment you stop the Reclast or Prolia or whatever, you begin to pee out that dead bone. You might as well for all the good the dead bone is doing for you. The last thing I want in this life is osteonecrosis. I may not be in love with my jaw line - but at least I have one!
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@sue225 Reclast has been recommended to me by 3 different doctors, plus I know two people on it who have had no problems. I too hate the idea of it being in my system for a year though. An alternative that the endocrinologist I have chosen suggested was a different infusion that you have every three months but for some reason it takes a few hours to get the infusion!
There really is no great option at all.
JK