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How did you manage the pain side effects of Prolia?
Osteoporosis & Bone Health | Last Active: Feb 18, 2023 | Replies (259)Comment receiving replies
Please do a lot of research before you take that Reclast or Prolia. I have not talked to one person who got better using that. I wish I could get my new DEXA scan - but I have to wait until the COVID 19 is not so bad (I have NO immune system). I have been doing nutritional supplements, exercise, and also a very low dose of estrogen. My previous DEXA scan score was very bad -5.7 and I was fracturing. The fracturing has stopped. But I need to get a new scan before I can claim I've improved. I refuse to take something with side effects so bad. Talking to those two women whose jaws were ruined by osteonecrosis after using those drugs was enough to convince me not to try it. The doctor was furious when I said I wouldn't take it. She left the room without saying another word. She knew absolutely nothing about nutrition - when I started talking about calcium, magnesium and boron she looked at me like I was speaking some other language. Those women that got osteonecrosis said it didn't stop with their jaws, it continued to waste other parts of their bodies. No way am I going to pay money to take a chance on that.
BTW: I took my parrot off the heart medication they gave her and she is back to normal! I thought she would die last night - but she is back to being herself! It's a miracle!
Replies to "Please do a lot of research before you take that Reclast or Prolia. I have not..."
@ parrotqueen I am on Tymlos, I had to be on it for 6 weeks before my surgery. I'm doing great on it with some minor side effects. I will be continueing it until my spine has healed from the surgery. They told me I would have to take it for up to two years, but my endocrinologist said to ask my surgeon about it to see if I can stop it after I heal. Then they would put me on something else. If your bones are that bad, I'm worried about you. Ask about Tymlos and see if she will ok that for you. It is an injection into the stomach once a day and the needle is so small you don't even feel it. Bless you!
Thanks for your advice. I have had three Prolia injections and really dont want the next one. My bone density based on Dexa results definitely showed significant improvement. I am a big researcher. Reclast or Aclasta as it is called in Canada sounds like a whole new kettle of worms. However, discontinuing Prolia without going on a "relay" drug for one year puts you at risk for vertebral fractures. This is a tiny little fact that many doctors fail to mention at the outset. Amgen, the maker of Prolia, now has this warning in their own literature.
Right now, from my perspective, there are no terrific pharmaceutical choices for osteoporosis.
Wishing your parrot continued good health. Stay safe!
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@parrotqueen I,m so glad to hear about your parrot . You sounded so upset so am glad to hear this again. No there, s no way I,m taking any of those bone builders not after what happened to my friend in Pa. Take care