← Return to How did you manage the pain side effects of Prolia?

Discussion
Comment receiving replies
@suemer

Attached is my osteoporosis spreadsheet. Make one for yourself. This spreadsheet is from 1999. I am now 70. The T-score that they all use is based on a 32 year old's bone density. The Z score is based on your age. Hmmm. We all know that as you age from 30 on, we lose some bone. Some of us lose more bone at a faster rate as we all know. But look at how long it took you to get where you are right now. Before you take this drug or any injectable drug, get online and research it. Go to the Amgen website and review the tables there. This quote is taken from their medication guide. "• Increased risk of broken bones, including broken bones in the spine, after stopping Prolia. After your treatment with Prolia is stopped, your risk for breaking bones, including bones in your spine, is increased. Your risk for having more than 1 broken bone in your spine is increased if you have already had a broken bone in your spine. Do not stop taking Prolia without first talking with your doctor. If your Prolia treatment is stopped, talk to your doctor about other medicine that you
can take." So when you have to stop taking it at the 3 year level, what happens? Another drug? My endocrinologist agreed to prescribe physical therapy for resistance training. I have been doing that for almost 2 years. I have been doing strength training for 3 years. In the past 4 months I have enrolled in a balance class with other adults. I go to each one every week. My balance class costs me $30 a MONTH and it is ran by a physical therapist. We all get individualized help because we are not all at the same level of fitness. My physical therapist for resistance training is paid for by insurance. My strength training is done by a physical therapist and I do pay for that myself but it's worth it. If you aren't familiar with any good physical therapists, contact a good orthopedic clinic. They can recommend a great one. That's where mine came from. I get my next bone density this summer.

Jump to this post


Replies to "Attached is my osteoporosis spreadsheet. Make one for yourself. This spreadsheet is from 1999. I am..."

Also important is taking vitamin D3 about 4,000 IU per day, but at the minimum, 2,000 IU per day. Vitamin D3 has been shown to decrease falls in the elderly (anybody over 50) by 50% minimum. I have some articles from the major medical journals that are about 20 years old that review these studies - I might be able to dig them out if someone is interested. I think you can find these results if you do a google search. I used to fall all the timed, and now I never fall! The combination of D3 and physical therapy should set you up. I also wear extremely sensible (albeit expensive) shoes made by Joya. A less expensive good shoe with good support is Alegria. They are so good, nurses and surgeons wear them. I'm going for PT again today (different problem but I will sneak the osteoporosis in).

I set up the same kind of spreadsheet years ago! It is helpful to have this view of how things are going.