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How did you manage the pain side effects of Prolia?
Osteoporosis & Bone Health | Last Active: Feb 18, 2023 | Replies (259)Comment receiving replies
This is very rare but wanted to know if it has happened to anyone on this site. It’s a severe jaw infection and bone loss. It takes a long time to get relief. I would like to know the outcome for others that have gone through this. This is happening more and more and maybe not so rare after all. Prolia is poison!!!
Replies to "This is very rare but wanted to know if it has happened to anyone on this..."
@kay71 this is a problem, but the incidence is far less than the incidence of a fracture. I plan to start with one of these medications, but haven’t decided which one yet. 20%-30% of “elderly” (I put that in quotation marks because at 72 I still find it difficult to think of myself as elderly) people who have hip fractures, die within a year due to loss of mobility. Many people can never again walk independently. There are downsides, but I think the minute risk is worth it. We each have to research and decide for ourselves. Some choose to use various supplements but those too can be dangerous, there is no inspection and approval of many of them.
JK
Hi @kay71, I moved your message to this existing discussion in the Bones, Joints and Muscles group https://connect.mayoclinic.org/group/arthritis-and-joint-conditions-268850/ Here's you'll connect with many members dealing with osteoporosis and managing its treatment.
Osteonecrosis of the jaw is a horrible potential side effect of antiresorptive medications including bisphosphonates. How have you been managing it?
Yes, it happened to me! My last shot was May 6th, 2019 and I’m still recovering! May never recover. My oncologist told me I had to take it because of a cancer medicine without even checking my bone density. It turned out she was just doing this as a prevention and almost cost me my life. I don’t have osteoporosis and had no dental issues! I am feeling better but not fully we’ll yet.
Hi kay 71. Thank you for the post about Prolia. Since I can't decide which poison to take.I have had dental issues in past and had all my upper teeth removed and a permanent denture put in. Finally all is well there and I read about Prolia possibly causing side effects. I have a hyper thyroid which decelerated my bone loss. My left arm is changed by 12% from my Dexa from last year. I have no choice and scared. I may have to choose Tymlos. Anyone on this board used Tymlos? Also Kay71 why didn't they give you Tymlos?
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Good morning @kay71 . I’ve heard of osteonecrosis of the jaw and sometimes worry about it. I take Fosamax and it, too, lists this awful jaw problem. I just make sure I have good dental checkups! Have you felt any symptoms that make you think it’s happening?