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@parrotqueen

I as so glad you spoke up. I was on the verge of starting Prolia, but checked in with a support group for osteoporosis on Facebook. They put me in touch with two women who had full-blown osteonecrosis. They told me they lost use of their jaws and the osteonecrosis was now attacking other bones! The next time I saw my endocrinologist, I told her I would not take Prolia. She got up and walked out of the room. Needless to say, I will be looking for another doctor to work with me on bone health. I hope you will alert others to what happened every chance you get. Those bone drugs are poorly studied and have little redeeming features once you study them. I am now studying nutritions books such as "Advance Nutrition: Macronutrients, Micronutrients, and Metabolism" by Carolyn D. Berdanier and Janos Zempleni in my quest for knowledge on how to help my bones. There must be a better way - and I think it can be addressed with diet. I wish you all the best luck with your cancer treatment.

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Replies to "I as so glad you spoke up. I was on the verge of starting Prolia, but..."

Hi Parrotqueen,
I applaud your self care and research. I am medicine averse period unless it is life saving. I also did the research and before I take any new medicine, I read the contraindications and side effects. Therefore, I am dealing with osteoporosis by keeping as active as possible. When I sit I become stiff and sore and all joints work best if I keep moving. I love to dance all night and am more balanced and coordinated the next day. Amazing. It is easy to just sit, but the payback is ouchy. By keeping my muscles strong and tendons flexible I hope to keep those bones in place and protected. So that is my best solution. Drug companies and doctors don't like it.