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Uterine Papillary Serous Carcinoma: What treatments did you have?
Gynecologic Cancers | Last Active: 1 day ago | Replies (124)Comment receiving replies
I am new here. Was diagnosed with serous endometrial cancer in early 2011, stage 3C. It was only found during the surgery for a "common" uterine cancer. The serous endometrial cancer was found during the surgery in 3 lymph nodes. It had not shown up in the uterine biopsy pre-surgery. Had complete hysterectomy. Had carbo/platin chemo, no radiation. Following the chemo, my oncologist at the time urged me to stay on Aromasin by mouth as long as possible. I have continued on Aromasin now for 8 years. My current oncologist says she will not approve of continued use of Aromasin after 10 years as she doubts it would have any affect.
I would like to know if anyone reading this has been on Aromasin longer than 10 years, and what side effects have been noted. I am having some nerve related symptoms in my extremities, but don't know if they are related to the Aromasin, or something else, possibly Parkinson's.
I would also like to add this little footnote: My surgeon told me fairly recently that "they" had not expected me to survive this long. In fact, apparently they had not expected me to survive long at all after the chemo. He did not explain any further and I didn't ask.
But, dear ladies, I am still here at 82 years of age, 8 years post diagnosis. How much longer I will be around, I don't know. What I do know is that there is a God and He does miracles. So do your best at beating this, and pray.
Sent with love to each of you,
MiracleGirl
Replies to "I am new here. Was diagnosed with serous endometrial cancer in early 2011, stage 3C. It..."
@miraclegirl thank you for sharing your story, your strength truly inspires me! I am new to this journey, having begun it in the summer of 2018, diagnosed with 1A uterine serous cell. Had complete hysterectomy, Carboplatin & Taxol, and brachiotherapy. I finished with it all Nov., 2018, and I just celebrated 1 year being NED. I am not familiar with Aromasin? But chemo left my feet pretty numb, even now. Sometimes it seems better - maybe I am just used to it? - but mostly it is always there. Not sure it will ever go away completely, but I'm not complaining. You are right, there is a God who does miracles, and we need to pray! I will pray for you 🙂
I am also grateful for you post. I have serous endometrial cancer, stage 4, and was given a very dire prognosis in January . I was given 'non-curative" chemotherapy earlier this year but denied radiotherapy "because it wouldn't extend my life". I traveled to Australia (from New Zealand) to get it where attitudes were more positive and technology more advanced. I have recently been prescribed Lexatrole, replacing Tamoxafen. Letrozole is an aromatase inhibitor, like Aromasin. My tumour was estrogen sensitive and I am post-menopausal. I had to have a bone scan before I started Letrozole , and will have regular ones, as a thinning of the bones is one risk with it. I continue to feel well and am doing my normal activities. I am currently training for a 300 km bike trail from Mount Cook to the sea over 5 days. I look forward to making my 80's like you!!
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What an inspiring story! So fortunate they found it and treated it. I have not heard of being on Aromisin as it's normally used for brest cancer but obviously it hasn't hurt you. My continued nerve damage is a direct result of the chemo I've been told so maybe it and not the drug is responsible?
You've given me such hope reading your posting this morning. Thank you so much and I suspect you'll be here a lot longer still 💕