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Uterine Papillary Serous Carcinoma: What treatments did you have?
Gynecologic Cancers | Last Active: Mar 14, 2022 | Replies (119)Comment receiving replies
Thank you. I was treated in canada so no you dont have to have been treated at Mayo. Insight timer and Tai Chi have made a world of difference for my healing. I try hard to continue my plant based diet but do have a 100 ml of red wine for the resveratol..I live in British Columbia and am very grateful for this group as well as I stumbled upon it at just the right time in this process. (Although it was never a group I was seeking to be a member of =) as none of us were!!!!)Everywhere has different treatment protocols so it was a bit frustrating. I wanted the one that was right for me not just”the standard” one size fits all as we are all different. Not sure I got that but I’m remaining optimistic. I still cycle 40k daily or walk 75 min and hike when the snow is off the mountains. I am also retired from teaching but occasionally help them out. i wish I knew a way to get some $$$$ to go to our type of cancer research. I ‘d be good at organizing a fundraiser so if you have any ideas they are most welcome !! What do you have for breakfast? I struggle with that meal. Also I take grape seed extract and turmeric daily as well as berberine, quercitin and resveratol plus B6 B12..who knows if it helps but it was recommended by the integrative health doc who kept my kidneys and liver functioning during chemo with astralagus. the oncologist was on board with this. My oncologist lowered Paclitaxel dose and said its unlikely any neuropathy will happen with that but alas I have it quite badly but still walk and exercise through it. I just ignore the pain and follow my mantra “just keep moving” INsight timer is a wonderful resource and has kept me from being negative . You mentioned you take about 40 supplements? Are they related to the UPSC ?
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@goldengirl2 -- I admire your stamina for your daily activities! Good for you. For fundraising, I'm taking part in the Nov. 2-3 education day and National Race to End Women's Cancer (doing the walk) for the first time this year. It's organized by the Foundation for Women's Cancer in Washington, D.C. You can find info about it and the organization here: https://www.foundationforwomenscancer.org/events-courses/national-race-to-end-womens-cancer/ I'm thinking that this organization is our best hope right now in funding studies for advancements in this area. I'm combining the walk with East Coast family visits. For breakfast, I eat steel cut oats with berries, ground flax seeds, chia seeds, psyllium husk and home-made nut milk. Fifteen of my daily supplements are Turkey Tail mushrooms (Coriolus) and eight are Reishi Gano 161 mushroom supplements. I truly believe that they will prevent a recurrence of UPSC along with a healthy lifestyle. Last month I had a scare with rumblings in my pelvic area but that turned out to be some GI issues so I just added some more supplements. Most of the supplements are for energy, immunity and now gut issues. I'm hoping to reduce this amount because it's very expensive but I will follow my integrative doctor's recommendation to take Coriolus and Reishi for two more years.