The supplements I took for neuropathy were L-Glutamine, L-Carnitine, Thiocid, B-Complex, B6 (later P5P) and Seriphos. These were all recommended by my alternative medical doctor, one at a time until my symptoms plateaued and then decreased. Sorry, I cannot remember what order they were recommended after L-Glutamine. Now, almost two years after my active treatment ended I'm only taking the following supplements for neuropathy: P5P, which I will stop when I finish what I bought, and Seriphos, which I will continue. I probably take about 40 supplements total daily. I'm 71 and retired so I take it easy when I need to. I walk 30 minutes a day, take yoga once a week and back strengthening classes twice a week. I want to get back to the two yoga classes I stopped when I added the back class. I take a number of health-related online master classes and right now am working on improving my sleep (insomnia and sleep apnea), and gut issues (motility). I really credit the fact that I have been on a plant-based, whole foods diet for almost 5 years and stopped drinking my beloved nightly red wine a year before my diagnosis for my health. I've been meditating daily for 2 years but am taking a monthly-long break from my hour-long version and listening to guided sleep mediation nightly from the free Insight Timer app, which my GP recommended. Just this week I feel as though my energy has increased by 30%, which is very, very exciting, due to a number of steps I have taken. My surgeon said the signs of recurrence to watch out for are pain in the pelvic area, bloating, and of course vaginal bleeding.
I should disclose that I was not treated at Mayo Clinic. I just happened upon this group online and was so excited because I haven't ever met anyone else who was diagnosed with UPSC and I thought it was an answer to a prayer. I live in Seattle and was treated at Seattle Cancer Care Alliance (a partnership between Fred Hutch Cancer Research, University of Washington and Seattle Children's Hospital). @colleenyoung--please tell me if I needed to have been treated at Mayo to be part of this discussion. Thank you.