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DiscussionUterine Papillary Serous Carcinoma: What treatments did you have?
Gynecologic Cancers | Last Active: Dec 9 9:36pm | Replies (122)Comment receiving replies
Replies to "What are the rad induced digestive changes? It’s these things I’m worried about..."
I wrote a really long reply but I don't see it here... it seemed to be here last night..?
I had three courses of vaginal brachytherapy in late September 2018 and it was sandwiched in between chemo. My normal chemo side effects were incontinence, followed by a few days of constipation followed by a few days of diarrhea. After the brachy sandwich I had this same sequence followed by horribly painful diarrhea, 6 times in one day, then the next day it went away. I have occasional diarrhea now one month post lady chemo. My main complaint is that my body's traditional signals for elimination no longer work well. When it tells me that I need to go, I have zero time to run to the toilet. Bowels & bladder have settled down so that I am on my way back to normal but it is dicey everyday. I still have no appetite so I am no where near consuming the volume of food and liquid I used to so there is that in the equation. My team told me to wait one year after the last treatment to assess changes and that this might be the new normal for me. I can easily deal with these challenges, but if the diarrhea came back I would be housebound. Diarrhea is one of the more serious side effects from radiation for uterine cancer, USPC.
Hi again. First I just want to say that UPSC, as you obviously know, is serious enough that I am every single day grateful to be dealing with side effects instead of dealing with it! Also I know it's highly individualized and I already had IBS before any of my treatment began, so I'm clearly digestive-sensitive to start with. What happened to me after treatment may be because of that. After all the external rad I'm just far more prone to diarrhea and cramps and have to manage my diet differently. It was getting severe for a while and I had to make changes ----I eat closer to a vegetarian/ vegan diet now, which is okay with me since I do animal advocacy anyway--- for instance I do better with non dairy ice cream and milk and cheese than with dairy products. So it has been a trial and error process. My gastroenterologist was a big help in recommending a modified FODMAP diet. (Again, easy to look up, until I can post links.)