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maryannegau (@maryannegau)

Small intestinal bacterial overgrowth (SIBO)

Digestive Health | Last Active: May 5, 2021 | Replies (60)

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@gtassithomas

I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia, sour taste in my mouth and I had rapid wt loss of 30 pound over 3-4 mos. I was not trying but having so much diarrhea etc couldn't eat. Stress was moderate normal and I had taken antibiotic month or so before symptoms. I was diagnosed with peripheral neuropathy unknown cause the year before. No diabetics, no health problem except overwrite since kids born. Since this began my symptoms have worsened to include severe abdominal pain,
face flushing flush and heart pounding(usually with eating or diarrhea) and some reflux symptoms, I have also found that I have low Igg immunity. I have had full GI workup, Ct scan Mri etc. Only positive findings are 2 breath tests positive for sibo.
I have take xifaxin antibiotic 6 times over 4 years base on 2 tests and return of symptoms, I am wondering if I could have an underlying motility disorder as my esphogeal manometry showed hypercontractile esophagus ang gsstric empying stud showed rapid gastric emptying. Can/ would Mayo dr help me? I can't stay on antibiotics forever. Also in the past year I now have diverticulosis and a hiatal hernia eventhogh I am much thinner and hardly eat

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Replies to "I started getting sick 4 years ago at 53 years old. I started having diarrhea, dyspepsia,..."

You need to contact Mayo directly to request an appointment. No guarantee that they will see you. They will gather your information and get back to you about whether you will get the appointment.

Glad it is working out for you in Phoenix. Great idea to see a good specialist.

Right, in September of 2018 I was seen and had to pay 15% over what Medicare paid. It was less than $200 for two specialists appointments.

That is certainly reasonable! I assume that you are not an AZ resident? I guess the real consideration would be how much $$ would be involved if there ended up to be numerous costly tests and procedures. Thanks!

I called the Phoenix clinic today. Basically, they told me that because of the high demand for care in certain specialties (e.g gastroenterology) they are now not accepting anyone at all on a government health care program—that is anyone on Medicare (even with supplementary insurance) or Medicaid. So I guess that ends my quest for care at Mayo.

Wow, I am sorry to hear that!

Hi @gtassithomas,

If you would like to make an appointment at Mayo Clinic, you can call one of our appointment offices. You can also request an appointment online. The contact information for Minnesota, Arizona and Florida can be found here: http://www.mayoclinic.org/appointments
Appointment coordinators will ask questions to help direct you to the best specialist.

Might I suggest you also call Mayo Clinic's Patient Account Services at 800-660-4582
For further information check out this resource about billing and insurance from Mayo Clinic: https://www.mayoclinic.org/patient-visitor-guide/billing-insurance

I also encourage you to view this discussion, https://connect.mayoclinic.org/discussion/xifaxan/ where @astaingegerdm @kltchrmn @contentandwell @drpepper @guthealth have shared their insights about Xifaxan.

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