← Return to Just Diagnosed Emphysema
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Replies to "I feel very sad that no one but a moderator responded to my post. I guess..."
It's me again @jeanette52. I'm confident that other members will chime in soon. As you know first-hand emphysema is a challenging condition. I find that the participation of members in the Lung Health group comes and goes as members are able.
It sounds like you're not convinced of the diagnosis of emphysema. Have you considered a second opinion?
Hello Jeanette. I have just become a mentor and have felt many of the things that you have. I do have mild emphysema, COPD and PTSD from lung cancer. I also am not a stranger to anxiety. I don't know anyone who has been told that they have cancer and not been anxious, for a long time. I can't imagine how you are coping with the loss of your daughter. I can't imagine the grief and anxiety on top of your health problems. Now that a year has gone by, however, it's time to take care of yourself. This doesn't mean forgetting your daughter or not being upset. It means that your health may be at risk now, according to your symptoms. I recommend a stop smoking group. I smoked for 35 years and quit the week before my first lung cancer. That was 21 years ago and I haven't smoked since. Yes it was very tough, and I told myself that if I wanted to live I had to stop. That actually became my mantra. I'm sure that you can find a group near you or a hotline. Did you know that sometimes the contrast for CT scans can cause an allergic reaction? I will try to answer your posts in a more timely manner and I'm sorry that any of us caused you more sorrow.
@jeanette52, Here is some information about emphysema that you might be interested in, since you are newly diagnosed.
https://www.mayoclinic.org/diseases-conditions/emphysema/symptoms-causes/syc-20355555
I have no experience with emphysema, but I can imagine your desire to connect with someone who is familiar with oit. I see that you have posted this question 2 days ago, and I suggest that you hang in for a while longer. It can take a bit more time for our members and volunteer mentors to read and respond to the discussions. Weekends are often very busy for many people, plus members and volunteer mentors have their own jobs, families, health factors that can limit the amount of time that they can commit.
Have you read looked at the discussion groups that Colleen provided? As a Connect member, you are invited to ask questions and make comments to any of the replies that you are interested in.
If you need help to do this, Will you let me know? I will be checking, and be ready to assist you.