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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: May 22 9:31am | Replies (585)

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@ritafarmer

I was already being seen by a rheumatologist for early onset osteoarthritis He was doing research on osteoporosis. I had an unexplained stress fracture in a foot. I initially saw a different doctor because my doctor was out of town. I asked him about osteoporosis, and he dismissed it. When I saw my doctor for a follow-up, HE brought up osteoporosis before I did and wanted to do a DEXA, which I readily agreed to. I still remember his comments when he back with my DEXA results: "I'm so glad that we did this." I'm lucky that he was my doctor. He left the practice and assigned me to another doctor. She has said that she would never have ordered a DEXA for a stress fracture in a foot because "people get stress fractures all the time."

Now, regarding drugs--i was on Fosamax for several years. My bone density initially went up, but then it started to go back down. By this time, I was under the care of the second doctor. At this time, I presented a problem because I was premenopausal. My doctor wanted to use Forteo, but since I was premenopausal, I had to have a major bone fracture (fingers and toes didn't count). I remembered that I had a freak accident in a hotel room in Atlanta, Georgia, where I bumped into a sharp corner on a cabinet and broke a rib. That was a major bone fracture. It was approved by my insurance company, and I was on it for two years. I am very thankful that I was on it before I was old enough to be on a Medicare prescription drug plan. I hit the max on my drug copay very quickly as I was on another, very expensive monthly injection for asthma. As with most people, I had a big increase in bone density while on Forteo. After the two years of Forteo, I was on Reclst for several years. I had some small increases. I have been on Prolia for 6 years, and it was on this drug that I have finally moved into osteopenia. I have an appointment in two weeks where I have another DEXA, and based on the results, we will determine a strategy going forward.

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Replies to "I was already being seen by a rheumatologist for early onset osteoarthritis He was doing research..."

So glad you have improved! I have found through the years that we have to be our best advocates and find doctors that listen to all our concerns.

Great news on my end today....my insurance finally approved my for Evenity! This is a once a month injection. I am keeping my fingers crossed for good results.