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Forteo vs. Tymlos: Which did you choose?
Osteoporosis & Bone Health | Last Active: 3 days ago | Replies (631)Comment receiving replies
@arlene7, Good afternoon. Welcome to Connect. I am very interested in your information about Evenity and your choice of Tymlos or Forteo because of insurance. I have chosen to answer you publicly because on Connect, sharing patient information and experiences is our modus operandi. Right now members share osteoporosis stories, questions, and experiences so that we can have current information of great value for our members which I hope includes you.
So please share your decision with us and the reasons for your choice. If you learn other things please update us.
I am sorry about your diagnosis of "severe" osteoporosis at that very young age of 62. It was obviously a big shock for me even at 76. I am 78 now and am just completing one year of Tymlos. You, @arlene7, have a lot of catching up to do......because like me you do not want to have any fractures. Do you have spinal fractures now?
I chose Tymlos after very bad side effects with bisphosphonates. The injection procedure is very simple. It quickly becomes second nature. You may want to talk to your doctor about a morning or evening injection. My preference is the morning because I would forget at night. How may we continue to be supportive? And I don't know about your lifestyle but am passing along this: Forteo has to be refrigerated 100% of the time. Tymlos is more stable and only needs refrigeration until it is opened. Are you a traveler?
May you be safe and protected.
Chris
Replies to "@arlene7, Good afternoon. Welcome to Connect. I am very interested in your information about Evenity and..."
Just a quick comment--i was diagnosed with severe osteoporosis at the age of 41. My doctor said that I was the right "type"- -White, Europeam ancestry, and my steroid asthma inhaler put me "over the edge." My bone density was worse than my mother's when I finally dragged her to the doctor in her early 80's. 4 years of treatment were not enough to keep her from breaking her hip. However, 20 years of treatment HAS been enough to push me into osteopenia, so I'm hopeful that i won't break a hip in my 80's
@arlene7 I'm on Tymlos too. They told me for 2 years, but my endocrinologist whats me to ask my surgeon if I can go off of it after I heal from my spine surgery and then they would start me on something else. It does make me fatigued, but I may be fatigued from the pain I have Tests done next Monday for surgeries on June 9th and 11th.
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Hi Chris,
Thank you so much for your reply. Currently, I am still pursuing the approval from my insurance company for Evenity, even after three denials. My fear of needles is overwhelming, considering that I would need to inject myself on a daily basis. Also Evenity is known to build bones especially in the spinal area, where I seem to have most of my bone loss. Therefore, my preference would be Evenity. It is so disappointing dealing with insurance companies, however I won’t give up!
My doctor has restricted my lifting to 15 pounds, no bike rides, or participation in other activities with risks of falling. As a very active person and a new grandmother it worries me to have these restrictions. I want to enjoy my grandchildren fully, and I now have to be so careful to avoid falls. Luckily, I have not had any fractures and have found myself being so cautious about everything I do. Trying my best to avoid any falls.
I was also diagnosed with idiopathic hypocalciuria, which I guess is why I have weak bones. Was prescribed a diuretic, but holding off on taking because it has sulfa and I was allergic to sulfa at a younger age. Want to visit an allergist first but with the corona virus I do not want to visits a doctor quite yet.
Hopefully I will hear back from my insurance company by the end of this week and can begin my journey.
As a side note, both my mother and grandmother had osteopenia but not severe.
Thanks again for your support.
-Arlene