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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: May 22 9:31am | Replies (585)

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@diva

This is so interesting reading you will nee to be on something after Tymlos. My Dr. never said anything. I have started to read that Chinese medicine is a possibility. The thought for me to continue forever doesn't sit well. Since I don't get along well with most meds. Have just started Tymlos.Thank goodness for this group.

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Replies to "This is so interesting reading you will nee to be on something after Tymlos. My Dr...."

I’m finding most drs won’t/don’t tell you up front that you’ll have to be on another med (usually for life) after being on Forteo or tymlos. When I’ve questioned my surgeon and primary care drs, they admit you do.... or you’ll lose whatever improvement you’ve gained.

When we say forever on something, it does not mean continually every year. .Tymlos and Forteo are different in that they act quickly and exit quickly - they don't hang around in your bones for years. So the way I understood it from my endo is I will do Reclast for a year or 2, we will perform DXA each year, then I will likely take a break from anything and continue to do annual DXA. When it starts slipping, I will have to do something again. i think both bisphosphonates and prolia keep the bone for shedding and have longer term action - for years. Which is also why I believe now most doctors actually stop oral bisphosphonates after maximum 5 consecutive years to let your body do some normal turnover and not just hold in old bone. I'm sure I did not say that scientifically correct, but close. So, you will likely have some time off meds, but seems very individual. Make the most of the time you are able to build muscle. That is so important to help maintain as well. Do some weight bearing exercise as many days a week as possible - even walking 30 minutes a day (can be 2 or 3 intervals of 10-15 minutes) is helpful. Try to do at least 2 days of some strengthening - hand weights, bands, or supervised gym equipment workout. I just have free weights and bands and have lots of print outs of suggested exercises which I try to mix up and do 15 minutes a few times a week. Also, daily add in some balance exercises which are typically weight bearing and also muscle building to some extent. Those also can be found on the internet. It all helps, along with healthy diet. I look at that as being helpful for my general well being, and fighting disease of all kind, so an overall benefit.

Good afternoon @diva, it has been a while since we checked in with each other. I finally have a "med buddy" for I too am not med friendly or at least my body isn't. I am very sensitive to bisphosphonates. My endocrinologist said no way......for any of them and so I am on Tymlos. The proof will be in the pudding so to speak.....when I get the results from my first year DEXA scan.

Would you please pass along your findings on Chinese medicine so all of us will be informed.

Did you plan to contact your Dr. about what she/he wants you will need to be on after. Tymlos? I think that information will be helpful to others. Please share.

May you be content and at ease these days.
Chris