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Forteo vs. Tymlos: Which did you choose?

Osteoporosis & Bone Health | Last Active: May 22 9:31am | Replies (585)

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@contentandwell

@kdbones It is really good to hear about your positive experiences. I too think building bone first sounds like a good way to go about it and wonder why my endo is not for that. Although the endo I went to is very highly regarded and the director of the bone density department at Mass General I am thinking of getting a second opinion with another endo who is very highly regarded. I go to him for diabetes and hypothyroidism. I didn't realize until I saw the other endo that he also treats osteoporosis.
I am doing all of the other things too that are supposed to help with osteoporosis, like exercising, taking Calcium, vitamin D, vitamin K, and even eating 2 prunes with every meal. Discovering that prunes help with osteoporosis was a real surprise but it is out there on a number or reputable websites.
JK

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Replies to "@kdbones It is really good to hear about your positive experiences. I too think building bone..."

I recently moved to MA from different state. My endo and OB/Gyn there were both suggesting either Prolia or oral bisphosphonates. That was before I had Gerd diagnosis. I see someone at Brigham Women's so we are in the same Partners Group. She was very open. She laid out all 4 options during our first meeting a year ago. She said the order in which she would use - but did emphasize at that time that I will likely use every option at some time. She talked through pros/cons/percentage of negative reaction enough to withdraw treatment for each. I felt she was very thorough. When I left I thought I was going to begin with Reclast. But we decided to let me think about it. Over the next few weeks I researched and thought and we communicated online a few times as I came up with new questions. In the end I emailed her and explained my rationale for thinking it might be wise to begin with Tymlos, but that I didn't want to use my lifetime amount up so young. She said that's fine - my decision. She did have to get approval, and maybe sometimes tougher for the Tymlos because it is very expensive for insurance. Now I just got my appointment canceled on Friday afternoon and need to call tomorrow to find out what we are going to do...I am assuming it is because of the Coronavirus and keeping well people away from hospitals. I am supposed to have DXA at the hospital tomorrow and trying to decide whether to cancel that in light of everything that has happened here in past week with tightened precautions. I'm wondering if they even allow a 1 month extension of Tymlos or if you have to apply for 6 month chunks at a time. Anyway, I would seek second opinion just to hear from another - I liked having more control myself. Somehow it may me feel better, and also like many have said I was less frightened of trying a daily Rx than one that takes longer to get out in case of bad reaction. Though i will say, she told me there was actually a slightly higher drop out rate from Tymlos than Reclast. But, bad reaction is gone in a day. I was fine. I felt the light headedness, and you just feel it at the beginning because you are focused on it. Slight headache. But it all passed quickly No big deal at all.