I SHOULD have been started on Forteo, according to a prep nurse for my scheduled pain management procedure, but I didn't know that. I don't meet with my Endo until mid April and I'm thinking that's when we'll talk. I guess I'm old school, thinking that you spend time and multiple sessions with the clinician, and are further to be referred for counseling by staff... Come to find out everything is now on "portals"; your lab results, Dexa info, prescriptions (supposedly), appointments with all clinicians, etc. I have learned the most from my short time on this chat, and then was able to understand what was being reported on the "portal". It's certainly a different time. I used the portal to send a message (more like a dissertation) to the Endo, to inform him of the knowledge gained in doing research, feed back from participants from a very reputable chat resource (indicated Mayo Clinic Chat), asking if he would consider and discuss the use of Tymlos even though its having less time on the market (informed I don't mind being in his clinical trial), because it appears to have comparable efficacy with a more tolerable side effect profile compared to Forteo, as well as other general concerns such of length of therapy. Haven't heard back yet but did leave a follow up message with the office assistant.
I was even in a panic state this past week, after I was scheduled to have a 4th session of Intralaminar epidural injection by the Interven Radiolog, that was arranged by the Neurosur who had told me I had osteopenia. My Pain Specialist (Anesthesiologist), who performed first 3 sessions of epidural inj since early December questioned why the additional inj (more steroids) especially since I had osteoporosis. I halted the procedure that very day it was to be performed, even though the Endo's office finally let me know on the very same day that it was ok to go ahead with inj #4, since I was on or starting Forteo... So as it stands today, no shots and no Forteo therapy yet.
A helpful contributor has suggested natural remedies. I come from the school of, I will try all things that will help improve my situation. I already started sharing my husband's calcium carbonate (Tums). Shopping for Vitamin D (which is best?) now. My folks are from the Caribbean and they are definitely not into the "Western" way of health management (pills, pills and more pills). The Island folks always seem to have some kind of leaf growing in the garden for every ailment under the sun!
Thank you all for the continued support... I'm getting so "edumacated" !!!

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