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Forteo vs. Tymlos: Which did you choose?
Osteoporosis & Bone Health | Last Active: May 22 9:31am | Replies (585)Comment receiving replies
I am a 65 yo who is in the process of beginning therapy on Forteo, as advised by the Endocrinologist that I was referred to by the Neurosurgeon, who will perform back surgery (L4/L5 extruded disk) in July 2020. Just learned that I have osteoporosis and screws will not hold in the spine after surgery. I know nothing about osteoporosis therapies, and just learning through searches. Endocr says he prefers Forteo bc it has history unlike Tymolos. As I am researching Forteo, I am freaked out by the patient reviews and commentaries on Forteo side effects and questionable efficacy. Since I need to build spine bone mass b4 surgery, (then later hip bone mass with Reclast according to Endocr), I started looking at other agents such as Prolia and Tymolos. Prolia is indicated for risk of fractures, and Tymolos may have the same indication and use as Forteo. I am overwhelmed bc I haven't even had a discussion on what a Dexacan and scores are (bone density test?), as others have eluded to...
I am looking to hear about patient experiences for those who are currently on or have recently been on Forteo and Tymolos therapies, so I can prepare myself for a good discussion b4 I complete the process of filling the Forteo prescription (and laying out BIG dollars).
Thank you for your input, direction and education!
Replies to "I am a 65 yo who is in the process of beginning therapy on Forteo, as..."
Good evening @cpierre, Welcome to Connect and to this very important discussion about osteoporosis medications. Many of our Connect members are checking in to update their experience. Let me know if you need help finding all of the different discussions and posts. Most of them are in this Bone, Joints, and Muscles Group.
My endocrinologist had the challenge of finding a non-biophosonate for my severe osteoporosis. My body reacted with bone pain when I tried Boniva. She ordered a lot of images and analyses of kidneys and calcium and other things I wasn't too familiar with at that point.
I chose Tymlos and I have to say, I have had no side effects other than a bit of nausea the first few days. I seem to tolerate the injections well and always do it in the morning. I am in month 9 of a planned 18 months. Then, I hope there is something other than bisphosphonate to keep the new bone healthy.
Last month I traveled for the first time with the Tymlos kit. Everything was fine although I am glad Tymlos is stable and doesn't have to be refrigerated. Forteo does need to be refrigerated.
But most of my Tymlos decision was based on the fact that with daily dosing, you can quit any time if you have an issue. With monthly, bi-annually or annual treatments, you are not able to just stop if you run into side effects trouble.
So...take some time to become familiar with what folks are thinking and feeling.
Be safe and protected,
Chris
Connect
Hello @cpierre, I moved your discussion to an existing discussion of the same "Forteo vs. Tymlos" title. I did this so you could read through many of the previous messages posted on the same subject and some those members could see your post as well. If you are replying by email, you can simply click on VIEW & REPLY to see the new location of your post and to read through some of the older posts.