← Return to Seizures and surgery: views on removing part of brain to stop them?

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@menville

I am 41 years old and have all four types of seizures plus a plethora of other undiagnosed neurological complications and an extensive medical history that I have been studying and struggling with for many years now. I just got out of the hospital myself so please forgive me if this has been repeated. Please look at some older posts if this gets too complicated. I have part MS, ALS, Parkinson’s, an AUTO-Immunodeficiency as well as nine documented cases of Shingles b/4 I was 34 years old. I retired from my CEO position to explore why I couldn’t remember how to get home from my office (round trip was only 0.2 miles). After exhaustive testing, they found my neurological problems may have been an attempt at poisoning me and neurological-psychiatric Aptitude testing was showing a serious rapid decline in spacial awareness, recall, etc. when I had a photographic memory and was a very advanced child early on in life. My first seizures started as hallucinations but were triggered by motion...automobiles, etc. and we’re definitely tied to time of year. I was diagnosed very early on with some form of beta thalassmemia as my very young grandfather was simultaneously given two-weeks to live with an incurable form of leukaemia at the TIME. My family was large and all military service members so they’re WWI and WWII early deaths were just mistaken as part of their service and sacrifices for the US of A. My paternal grandfather 👴 fought his diagnoses as he had a grandson in Desert Shield 🛡 who would have his one and only daughter on Dec. 7th, 1990. This was significant as my grandfather and all his 15 siblings served in the US NAVY and five were actually at Pearl Harbor when Japan 🇯🇵 tried to invade the US. He was kept in an isolation room and dedicated his life to science. His two-three weeks gave us almost three years and he did get to see his great-granchild. His grandson continued his service and was watching over me when he passed away at 41...I am 41 today and trying my heart out to beat these problems and find a cure as well. The only way they’ve been able to manage my seizures is through a high level of Valium. I have several life-threatening injuries that have me in and out of Brain and Spinal Rehab programs. No other drugs worked so we’re using a bunch of older drugs off-label to manage my life. It’s taken me along time to reconcile with a one-day-at-a-time life and fighting ignorance at every turn. I have even been accused of being crazy because no one could possibly understand this in two minutes yet they still try and continue to try and reinvent the wheel when MAYO Clinic and I found a way to make it just a little easier every day. I have lost so many but care so much for those that are experiencing the same thing. I try hard to be available when possible. I know I digress so Keep Hope and understand that the lack of Dignity, Human Kindness and such as will never matter as long as you KEEP LOOKING UP as Michael J.Fox has written and said.

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Replies to "I am 41 years old and have all four types of seizures plus a plethora of..."

Hi, @menville - wanted to check in with you and see how your health has been lately? Have you experienced any seizures recently? How are things going with your recall and spacial awareness you mentioned before had been declining?