@patrassi
Has his seizures improved any since surgery? If you decide
If you decide to have this procedure done, if it were me I’d scour the Country for a surgeon who has experience with this procedure. I believe Mayo has an excellent rating and good doctors but I also feel
there is no substitute for experience. I would think you are, (or should be) held to a higher standard in authorizing medical treatment for a child than for yourself. I wouldn’t consent to surgery based on hope. You have to very seriously consider the negative consequences that may occur, like the last time. Have all other options been absolutely ruled out? Have you discussed RNS or DBS? There is also treatment available in Canada that's not approved here. Might want to check it out or ask Mayo about it.
Living with seizures in my opinion is less risky than brain surgery. I had seizures nearly every day from 15-59.
Have realistic expectations.
Good 👍 luck,
Jake