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Seizures and surgery: views on removing part of brain to stop them?
Epilepsy & Seizures | Last Active: Oct 28, 2019 | Replies (45)Comment receiving replies
Dear @colleenyoung , sorry for not answering at time, it was really difficult the last days. My son had his video EEG done and some MRI and Spect.
The Mayo doctors told us he will need another surgery... but it is a really unique procedure , that was never done at Mayo Hospital.
So, in February, they are going to discuss his tests in a neurosurgeon meeting in Rochester and then , at the end of the month they will call us ...
I don’t know if I would have courage to submit him another procedure...
They increased his medication a lot.
We are waiting ...
Replies to "Dear @colleenyoung , sorry for not answering at time, it was really difficult the last days...."
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@patrassi
Has his seizures improved any since surgery? If you decide
If you decide to have this procedure done, if it were me I’d scour the Country for a surgeon who has experience with this procedure. I believe Mayo has an excellent rating and good doctors but I also feel
there is no substitute for experience. I would think you are, (or should be) held to a higher standard in authorizing medical treatment for a child than for yourself. I wouldn’t consent to surgery based on hope. You have to very seriously consider the negative consequences that may occur, like the last time. Have all other options been absolutely ruled out? Have you discussed RNS or DBS? There is also treatment available in Canada that's not approved here. Might want to check it out or ask Mayo about it.
Living with seizures in my opinion is less risky than brain surgery. I had seizures nearly every day from 15-59.
Have realistic expectations.
Good 👍 luck,
Jake