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DiscussionSeizures and surgery: views on removing part of brain to stop them?
Epilepsy & Seizures | Last Active: Oct 28, 2019 | Replies (45)Comment receiving replies
Replies to "@boston2mayo Welcome!!! I’m glad his surgery was a success. My parents refused to allow surgery and..."
Thanks Jake. Part of the left frontal lobe was removed. My son was at high risk of SUDEP and didn’t respond to medication. We’re convinced if we continued care in Boston that my son would be severely affected if not worse. The doctors at Mayo were completely baffled by what the BCH doctors were doing. It was a very difficult decision to have surgery. Yes it was a gamble but we were fighting for his life. He is off medication.