← Return to Aromatase Inhibitors: Did you decide to go on them or not?

Discussion
Comment receiving replies
@rababkoepp

Good morning ladies 🙂 my name is Rabab. I was diagnosed with invasive ductal carcinoma stage two almost 2 years ago. I took Letrozol For four months and experienced joint pain and fatigue and I decided to opt out of taking medication and changed my diet and lifestyle. So far so good. I’m writing because I am very curious if anyone has gone off medication and how they’re doing and what lifestyle changes have they made. I am worried about recurrence as well. So please help me if you know of anyone Who has gone off the medication and how are they doing!!!

Jump to this post


Replies to "Good morning ladies :-) my name is Rabab. I was diagnosed with invasive ductal carcinoma stage..."


It is discussion you need to have with oncologist, but at end, it is your decision. The percent of recurrence with and without AI will depend on type cancer, prior treatment and genetics.

I am 65, had stage II breast cancer (one breast / 2 lymph nodes). I was on AI 6 months prior to lumpectomy, chemo and radiation. I tried 3 different AI meds over 6 months after radiation and decided to go off due side effect. I feel better off the Ais. Prior to decision I discussed with oncologist and my percent of recurrence without AI was only few percent points. It has been over 2 years since surgery and I continue to see oncologist every 6 months for recheck and have mammogram / MRI yearly. I have an MRI because my breast are very dense.

But, by sister had Stage 0 and diagnosed very early, she had lumpectomy, no chemo or radiation. In her case, the dr said it was important for her to take an AI because she had not had chemo or radiation to kill any cancer cells remaining.

So, have discussion with you oncologist and get the facts.

Good luck
Laurie M

@rababkoepp
I also had invasive ductal breast cancer, but in addition had a secondary tumor that is neuroendocrine cancer. For this reason I will remain on the AI and also have to undergo PET scans every 6 months due to the aggressive nature of the NET. I was first placed on anastrozole, then letrozole, and have found that exemestane has few bad side effects for me. I truly understand your reasoning and wish you all the best and hoping you get the answers you are seeking.