← Return to Aromatase Inhibitors: Did you decide to go on them or not?

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@kathyomaha55

Did they explain to you if it comes back - it may not be in the breast? It more likely comes back in the bones, brain, lung and liver. And that's why I decided to take the meds, But I'm only 64 and since switching to Exemestane, have only a few side effects. The joint pain is pretty much gone. I just wanted to make sure they told you that about re-occurrences.

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Replies to "Did they explain to you if it comes back - it may not be in the..."

The pill doesn’t cross the blood brain barrier so the pill does not prevent brain cancer anyway. So the pill is useless for preventing

@kathyomaha55 is correct! It more likely comes back in the bones, brain, lung & liver.
In late 2008 I was diagnosed with intermediate grade ductal carcinoma. (Only 1 small tumor-lymph nodes negative)
Lumpectomy & brachytherapy radiation.
Tamoxifen until 2016 - I tolerated it well for 8 years.
All my annual mammograms were clear. THOUGHT I WAS A SURVIVOR! (10/2019 was my latest clear mammogram)
11/2019 I started experiencing severe lower back pain-MRI showed extensive lesions throughout lumbar spine. 12/4/2019 bone biopsy revealed metastatic invasive ductal carcinoma breast cancer. PET Scan revealed extensive lesions throughout spine, sacrum, rib cage, skull.
YES IT CAN COME BACK!
There are side effects with Aromotase Inhibitors BUT I believe their side effects are better than metastatic breast cancer!
I am now on IBrance & Letrozole-there are side effects but I'm learning to tolerate. These 2 drugs have slowed down progression.
Yes there are re-occurences! Talk to your Dr about Metastic Breast Cancer (MBC) & maybe get a second opinion!