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Aromatase Inhibitors: Did you decide to go on them or not?
Breast Cancer | Last Active: May 12, 2023 | Replies (1190)Comment receiving replies
I also question the use of these drugs. I was told 87% survival with 83% with no drugs. I did do radiation and a lumpectomy and had a multitude of side effects with the radiation that only happen rarely, so I have decided against one more thing that would put me dealing with side effects. I have a Chek2 minor gene mutation and a possibility of schongrens or some other autoimmune disease that they cannot figure out. I already have osteopenia, some arthritis and the beginning of cataracts from the RAI131 radiation I took for thyroid cancer 3 years ago. It just seems everyone has had issues taking the medication. I have to keep a steady weight to keep my thyroid meds in line as well. I have two friends who never took it and they are six years and 17 years cancer free. I agree with whoever said it is just a personal decision. If mine comes back it is a mastectomy for me.
Replies to "I also question the use of these drugs. I was told 87% survival with 83% with..."
Talk to your oncologist. If it comes back it most likely will come back in the Brain, bones, lung or liver. So a Mastectomy will not help. After I had all these facts - i decided to take an AI. But it is a personal choice. I read like 20% or so of women stop taking it in the first 2 years of treatment from side effects. Because of my age at the time of diagnosis - 62 - I decided taking an AI was my choice. I want to live another 20 years.
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@shelleyc
Looking at your statement "If mine comes back, it is a mastectomy for me." That's what I thought with regards to ever having chemo, again. But during a conversation with my oncologist (a few years ago), he said that a mastectomy at that point wouldn't help. You might want to speak to your oncologist about that, too.