← Return to Aromatase Inhibitors: Did you decide to go on them or not?

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@cindylb

Posting some good news for a change (well, I hope). I have my FIVE YEAR post mastectomy check up in early June. Due to Covid 19 it will be a phone visit for now. Not sure how that will go exactly. Anyway, I believe that I will find no recurrance of my cancer and that means checkups once a year instead of every 6 months. So, a happy milestone is about to be passed. It will be seven years since my diagnosis for Stage 0 LCIS. I wasn't able to use the AI drugs or Tamoxifen so perhaps I've gotten lucky on this front. Hope so. I am struggling quite a lot with damage to my hand and arm from lymphedema and the cellulits and sepsis I experienced last November. It's been an unexpected pitfall. So, my advice to everyone is............watch for signs of lymphdema if they fiddled with your lymph nodes. I really thought mine was mild and well controlled and i wasn't careful enough (or just unlucky) and as I approach a time when I could be completely happy at Five Years I'm about 'half happy', ha ha....But.......it's possible to make it through this without the AI's (so far). Hope this helps someone out there to feel a little better if they can't tolerate the pills. Hugs.

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Replies to "Posting some good news for a change (well, I hope). I have my FIVE YEAR post..."

@cindylb I'm so sorry you are experience all of that lymphedema. I'm fairly lucky, so far don't have lymphedema but have had ongoing problems with axillary web syndrome (cording). I do all the exercises I've been shown by PT, but those pesky cords will come back with a bump or fall so I have to be watchful as you do with your lymphedema, but at least I don't have all that swelling. Oh the joys of breast cancer.....not!