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@lauradahl

Hello everyone~ I am new to this discussion but happy to be a part of it.I was diagnosed with stage 1 invasive ductal carcinoma 2 months ago..had a bilateral masectomy and reconstructive surgery at the same time as surgery...have a very strong family history of several types of cancer...have been on letrozole for 6 weeks...I had the oncotype DX test which scored 11 so was told chemo would probably not help me..so did not have any chemo or radiation..I have to say I am a little fearful that cancer may show up in my body somewhere else...what kinds of labs or scans do you have and how often do you have them? I have had a few relatives that have "fallen between the cracks" and really want to prevent that..so thankful to have a conversation with you!

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Replies to "Hello everyone~ I am new to this discussion but happy to be a part of it.I..."

lauradahl - I'm sure pretty much everyone on this site would agree that during the first months and years after diagnosis and in treatment you worry about, well, just about everything. It's impossible not to do so. Sounds like you were early stage and you opted for the mastectomies (which I did as well) to reduce your risk as much as possible and I suppose I thought also, reducing worry because without breasts, it's quite a lot harder to get breast cancer. In my family, prior to my sister having lung cancer....there was no cancer and my sister and I are still the only cancer people in our entire family, so perhaps there is a genetic component and perhaps there isn't always. That said............your doctors will want to see you frequently in the first two years. My doctors do regular exams of my chest area (I didn't have reconstruction), they do blood tests and I'm due this year for an MRI. I have had ultrasounds as well. The best thing you can do is be very proactive with how you feel, any symptoms you might have and things that feel different (once your body has had a chance to settle in a bit). It took me two years to feel anything like my old self. I had a scar revision surgery after a year and they used some drugs I was allergic to and unfortunately I ended up with some odd symptoms from that for a while. I feel pretty good now but I still let my doctors know about everything that's happening with me so they can check it out.
Hugs