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Watch and wait is over: meningioma has grown

Brain Tumor | Last Active: Nov 1, 2018 | Replies (31)

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@wkindel

@IndianaScott Thank you so much for sharing your experience. Right now I am aware of only two appointments. I would rather they do the surgery right away for several reasons. If it's growing I want it out! My doctor explained the problems with waiting, even though during my watch and wait phase I was told the location of the tumor complicates surgery. I have been able to hold it together, thankfully due to my faith. I think the fear of the unknown is bothering me more than the idea of the procedure itself. Of course, though money isn't the most important thing, it is very expensive for travel out of our very remote location, and lodging and food for family when we get there is high too. Colleen recommended I call Mayo tomorrow to get some of my specific questions answered, but I don't know who to ask for. Do you know? Thank you Scott

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Replies to "@IndianaScott Thank you so much for sharing your experience. Right now I am aware of only..."

I traveled from NM to AZ Mayo Clinic for my brain surgery. I rented a BnB for my family to stay in. It was a lot cheaper than a motel. ☺