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Watch and wait is over: meningioma has grown
Brain Tumor | Last Active: Nov 1, 2018 | Replies (31)Comment receiving replies
Hello @wkindel I am Scott (indianaacott) who Colleen referred to. I am pleased to e-meet you here although I am sorry to read of your heslth issues.
My wife had brain cancer and was a patient st Mayo for her entire 14 year war. We went the first time after her diagnosis in Chicago. All the scans, etc. were sent ahead and when shw was first seen the Mayo doctors had reviewed it all.
When we checked in at the front desk they gave us a complete packet of information and full explanation of what her schedule would be.
For medical reasons they decided to perform emergency surgery immediately so her case was, as @colleenyoung said, unique. We were never in the dark as we were kept wl informed all along the way.
Please feel free to ask any questions you might have for me.
Strength, courage, and peace!
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@IndianaScott Thank you so much for sharing your experience. Right now I am aware of only two appointments. I would rather they do the surgery right away for several reasons. If it's growing I want it out! My doctor explained the problems with waiting, even though during my watch and wait phase I was told the location of the tumor complicates surgery. I have been able to hold it together, thankfully due to my faith. I think the fear of the unknown is bothering me more than the idea of the procedure itself. Of course, though money isn't the most important thing, it is very expensive for travel out of our very remote location, and lodging and food for family when we get there is high too. Colleen recommended I call Mayo tomorrow to get some of my specific questions answered, but I don't know who to ask for. Do you know? Thank you Scott