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Watch and wait is over: meningioma has grown
Brain Tumor | Last Active: Nov 1, 2018 | Replies (31)Comment receiving replies
@colleenyoung Ok- I have two appointments on 10/29 at the Phoenix Mayo. We are flying down on a late flight the night before and my first appointment is at 8:00 am. I was wondering if someone is going to contact me and tell me what to expect. My doctor sent my MRI's and doctor notes. He is recommending surgery to remove my tumor because it is growing. I made flight plans and hotel room reservations for my husband that allowed me time to remain in Phoenix for the surgery and wait a week to fly (which is what my doctor said is protocol following brain surgery). Do the Mayo doctors review my records and tests before I get there and then evaluate me and decide if they agree with my neurosurgeon? If they do, is it possible I can stay and have it done right away? I hate the idea of having to come home and wait. Or is it most common that you do have to make two trips? Even with brain tumors? Trying to remain calm in this state of the unknown.
Replies to "@colleenyoung Ok- I have two appointments on 10/29 at the Phoenix Mayo. We are flying down..."
Hello @wkindel I am Scott (indianaacott) who Colleen referred to. I am pleased to e-meet you here although I am sorry to read of your heslth issues.
My wife had brain cancer and was a patient st Mayo for her entire 14 year war. We went the first time after her diagnosis in Chicago. All the scans, etc. were sent ahead and when shw was first seen the Mayo doctors had reviewed it all.
When we checked in at the front desk they gave us a complete packet of information and full explanation of what her schedule would be.
For medical reasons they decided to perform emergency surgery immediately so her case was, as @colleenyoung said, unique. We were never in the dark as we were kept wl informed all along the way.
Please feel free to ask any questions you might have for me.
Strength, courage, and peace!
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That's great news @wkindel. You're asking all the right questions about what to expect now that you have an appointment at Mayo Clinic. I recommend that you phone Mayo Clinic Phoenix to get answers specific to you about how long you can expect to be there and how the evaluation works, etc.
I'm also tagging other Connect members. @nancye3 @lindajean @rose4622 @jkenser and @IndianaScott have had brain tumor surgery (or a family member) at Mayo Clinic. They can share how the process was for them and answer questions like whether they made multiple trips for evaluation and then surgery or if everything was done in one visit. Keep in mind that everyone is different.