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Watch and wait is over: meningioma has grown
Brain Tumor | Last Active: Nov 1, 2018 | Replies (31)Comment receiving replies
Oh dear, @wkindel. I think I know what may be causing the abnormal response time. Just last week the Arizona campus switched their entire internal communications system to a more efficient, patient-centered system called EPIC. The system will make things better, however, transitions are always rough. I suggest you wait until tomorrow and perhaps try again. Be sure to mention the Brain Tumor 48-access program in your message. Let me know what happens.
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@colleenyoung Ok- I have two appointments on 10/29 at the Phoenix Mayo. We are flying down on a late flight the night before and my first appointment is at 8:00 am. I was wondering if someone is going to contact me and tell me what to expect. My doctor sent my MRI's and doctor notes. He is recommending surgery to remove my tumor because it is growing. I made flight plans and hotel room reservations for my husband that allowed me time to remain in Phoenix for the surgery and wait a week to fly (which is what my doctor said is protocol following brain surgery). Do the Mayo doctors review my records and tests before I get there and then evaluate me and decide if they agree with my neurosurgeon? If they do, is it possible I can stay and have it done right away? I hate the idea of having to come home and wait. Or is it most common that you do have to make two trips? Even with brain tumors? Trying to remain calm in this state of the unknown.