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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)
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@smit2720

Hi, I've had small fiber neuropathy for the past 2-3 years, and was diagnosed by skin biopsy last November. Some bloodwork came back and it shows I have auto-antibodies targeting TS-HDS. My doctor is going to start me on steroids via weekly IV treatment. He mentioned at this visit a little about IVIg treatment but didn't dive in too much because of the price. I was just curious as to if anyone who has had steroids via IV and/or IVIg treatment how the experience was (worth it, pain level post, etc.).

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Replies to "Hi, I've had small fiber neuropathy for the past 2-3 years, and was diagnosed by skin..."
John, Volunteer Mentor | @johnbishop | Dec 4, 2020

Hello @smit2720, I would like to add my welcome to Connect along with @geegie and other members. You will notice that we moved your post into an existing discussion - IVIG Infusions so that you can meet other members discussing IVIG treatments for neuropathy.

@sparshall @harley22 @arcticmark @jimhd and others may also be able to share their experience with IVIG treatments.

Did you have a specific diagnosis or cause for the small fiber neuropathy or is yours classified as idiopathic like mine?

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