Insurance will cover IVIG infusions. The full cost is prohibitive out of pocket. Few could afford it. Medicare Part D pays almost $15,000 a MONTH for my IVIG fluid alone. (80% — I pay the other 20%.) If I went to an infusion center, everything would be covered by Medicare Part B. For various reasons, I have chosen to have an infusion service send a nurse to my house, and I have to pay the full cost of the home nursing care out of pocket. That’s another $1,400 a month. If you have insurance and don’t mind going to an infusion center, you can get treatment without going broke.

For CIDP, the treatment is lifelong — unless it stops working. Then the neurologist will try something else, such as plasma exchange. CIDP must be treated. Leaving it untreated guarantees severe disability.