CIDP is a terrible disease. It affects different people in different ways, but it all comes down to a dreadful situation that can make just getting through the day a struggle. I hope IVIG can stop the progression of your damage. Hang in there, and know that you are not alone. The GBS/CIDP Foundation has a good site filled with medical information, and it has an online forum. The Foundation recommends the best treatment centers (“Centers of Excellence”), sponsors local chapters and events and a big annual conference with expert speakers. It’s a resource you might want to check out because it’s devoted entirely to CIDP and GBS (which some neurologists consider a short-term form of CIDP). I found their downloadable guide to physical therapy for CIDP patients (written by neurologists) very useful. Most physical therapists are unfamiliar with CIDP and can have you doing things that might harm your weak muscles. We have to learn enough about our conditions to protect ourselves from people who don’t understand the demands the disease makes on our bodies.

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