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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@rwinney

Wow, amazing how wonderful IVIG can be for some. The loss of my legs scares me the most. I do have balance thankfully but the weakness, pain and aching throughout my body is debiliating. Time will tell. Trying to be patient but at 49, I'd like to get moving, you know.

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Replies to "Wow, amazing how wonderful IVIG can be for some. The loss of my legs scares me..."

What works for me is getting IVIG regularly. My neurologist, who has a splendid reputation and specializes in CIDP, says off and on treatment is worthless. It wears off quickly and you’re right back where you started. Don’t hesitate to insist on regular infusions that will keep the level in your body steady long enough for it to do you some good. It’s not a short term medication like an antibiotic. It’s meant to be taken long term and regularly. .