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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: May 29 7:12pm | Replies (422)

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@sparshall

My neurologist set my schedule. I started with five days in a row once a month, but I hit the famous “trough” at the end of every cycle, and my doctor put me on weekly doses to keep the level of antibodies stable. I have no side effects other than feeling tired after each infusion. I have improved somewhat and don’t have the crippling nerve pain I started with. I had so much nerve damage before I was properly diagnosed that I’m grateful I can walk with a cane in the house and can use my arms and hands fully. At my age, I am very unlikely to see much healing of the damaged myelin, but that can happen in younger patients with the help of regular IVIG.

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Replies to "My neurologist set my schedule. I started with five days in a row once a month,..."

Wow, amazing how wonderful IVIG can be for some. The loss of my legs scares me the most. I do have balance thankfully but the weakness, pain and aching throughout my body is debiliating. Time will tell. Trying to be patient but at 49, I'd like to get moving, you know.

I started having some symptoms 7 yrs ago, starting in my toes and now it seems to have travelled thru most of my body.
Besides my feet and legs, it’s in my pelvic area, my hand, and my lips are numb.
I hope that IVIG will help me, but my neurologist is hoping to stop it from progressing.
Not much hope for curing it,unfortunately.