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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: 9 hours ago | Replies (376)

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@rwinney

Hello. You obviously speak from experience which holds a ton of value to me. Thank you for the info. I just began Medicare and went with CDPHP Medicare Advantage so I can pay my dues so to speak and be eligible for medi-gap, should I need for IVIG. I also wonder who decided on your frequency?

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Replies to "Hello. You obviously speak from experience which holds a ton of value to me. Thank you..."

My neurologist set my schedule. I started with five days in a row once a month, but I hit the famous “trough” at the end of every cycle, and my doctor put me on weekly doses to keep the level of antibodies stable. I have no side effects other than feeling tired after each infusion. I have improved somewhat and don’t have the crippling nerve pain I started with. I had so much nerve damage before I was properly diagnosed that I’m grateful I can walk with a cane in the house and can use my arms and hands fully. At my age, I am very unlikely to see much healing of the damaged myelin, but that can happen in younger patients with the help of regular IVIG.