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Has anyone had IVIG Infusions for Neuropathy?

Neuropathy | Last Active: Oct 3 7:57am | Replies (491)

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@arcticmark

I have been told that 50% of the antibodies from an IVIG infusion are processed out of your body by 21 days which is why my symptoms would reappear as the good antibodies were outnumbered by the bad antibodies produced by my body. Rates of production of antibodies vary which is how they have settled on a normal every four week regimen. It will work for the majority of people, but keep track of your own symptoms and see where you are as the IVIG antibodies disappear from your system.

Also, after IVIG worked in the trial BCBS of Maryland denied me again, and then on appeal started to pay my ongoing expenses. I had to hire a lawyer to get my trial money back. I did plus attorney fees. During this time I moved my care to BCBS of Mass and they approved my ongoing treatment in less than a month. I have heard that some patients are having insurance issues and having coverage for there IVIG terminated or being told that there is an IVIG shortage so they don't get any. I have not experienced this, it may be because of the presence of my lawyer or an odd antibody discovered in my . spinal fluid that isn't supposed to be there. Whatever, you are probably in for a fight but with perseverance you should be able to get coverage.

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Replies to "I have been told that 50% of the antibodies from an IVIG infusion are processed out..."

My Neuro told me last year when we spoke of IVIG that Medicare will not cover and it's a battle for approval. Nothing ventured, nothing gained.